We have lots of updates for Wyatt this week.
On Monday he had a brain MRI to see if the CMV had affected it. In order to complete the MRI our little guy had to go under anesthesia. He was the cutest little patient I’ve ever seen in his miniature hospital gown. the MRI took just over an hour and he did great under anesthesia. Monday was the LONGEST day and night ever! We received the most wonderful news the next day. God protected our sweet boy and his MRI results came back all normal! What a blessing and a HUGE miracle! The fact that his brain is not showing any inflammation after having this virus in his system for so long is truly a miracle! We felt a huge weight lifted after receiving the results. This test was the one we were most worried about. The results mean that there are no brain abnormalities and it is growing like it’s supposed to. However, what the MRI does not show is if CMV has caused any neurodevelopment problems. CMV could be in the fluids surrounding the brain. Only time will tell if he will face any neurodevelopment problems as he grows and physical milestones are reached or not.
On Tuesday, Wyatt saw an opthamologist to see if CMV had attacked his eyes. When we arrived at the office, we found that the power was out. Seems like God is really teaching us patience through this ordeal as well. So, we ran some errands until the power came on and then went back to the office to finish up the appointment. Praise Jesus that there were no cataracts and his macula and optic nerve were all normal. He will be reevaluated every 3 months as CMV can cause flare ups. Miracle after miracle….God’s hand has covered Wyatt completely. Thanks for all the prayers!
Friday morning we saw an infectious disease doctor to see if Wyatt should/could be on antivirals to stop CMV from continuing to attack Wyatt’s body. We met with two doctors. They were amazing and so knowledgable. They answered nearly all our questions before we even got a chance to ask them. They highly recommended that Wyatt start the antivirals right away. The levels of CMV in his blood were at high levels. The objective of the antivirals is to stop the progression of his hearing loss, protect his eyes from losing any eyesight, and protect his brain from neurological damage. There was no doubt in the doctor’s minds, nor in ours, to start that day on the meds. Wyatt will have to take them twice a day for the next 6 months. Yup…6 months! Unfortunately there are side effects. His red blood cell and white blood cell count will decrease as well as bone marrow function. Thus, his immune system will be weaker as well. They will monitor him closely to see how his body handles the meds and will see him every 2 weeks along with new labs done at each visit.
Off we went to get Wyatt’s blood drawn and picked up his first bottle of the medication. We walked to the parking lot and gave him his first dose. We are ready to stomp this nasty virus!
So far, Wyatt has been doing okay on it. He had a slight fever the first day and it makes his tummy a little upset but he has been such a good sport through it all.
Romans 12:12 “Rejoice in hope, be patient in tribulation, be constant in prayer.”
Thank you all for your thoughts, prayers, and kind words.
We are sure those of you following Wyatt’s story are wondering…did he get the appointment with infectious disease yesterday? Unfortunately he did not. His doctor and nurse tried everything they could to get him in somewhere yesterday. As his mom, I did to. I literally begged the doctor on the phone to squeeze him in and told him my heart. This whole process is so humbling. Wyatt’s doctor was able to get him in with Swedish infectious disease on Monday BUT the doctor there did say that Children’s hospital has done much more research, has better resources, and will give better treatment than at Swedish. At Swedish, they usually do not give the anti viral medication past 4 months of age. He said to keep our appointment on Friday, the 7th, at Children’s. I am so thankful for the doctor’s honesty.
We will face some very big decisions at our next appointment. The antiviral meds have some big risks. Please pray for God’s clear direction on what is best for Wyatt and his health.
We have a BIG week next week. Monday Wyatt gets an MRI of his brain. He will be going under anesthesia. They will be checking to see if any parts of his brain have been damaged by CMV. This is a scary one for us. Please pray for good results and normal brain development. Please also pray for peace for us as parents as we wait for the results and for God’s hand over Wyatt as he goes under anesthesia.
Tuesday Wyatt sees an opthamologist to get his eyes checked.
Friday is his Infectious Disease appointment to see if anti viral meds will be helpful.
I will bless the Lord at all times; his praise shall continually be in my mouth.
My soul makes its boast in the Lord; let the humble hear and be glad.
Oh, magnify the Lord with me, and let us exalt his name together!
Brad, Amy, Austin, and Wyatt
Today was a BIG day. Wyatt got hearing aids today! His hearing aids came in early on Monday (they weren’t supposed to arrive until November 7th) and there was a cancellation with audiology for today. This is unusual for this department but I think God opened that up just for Wyatt. 🙂 It was super exciting for Brad and I. We got it all on video too. Wyatt definitely responded to the hearing aids so we know he is getting sound!! When they first turned on, his eyes just got really big. The best part was when he heard his own voice. He thought it was super cool! His voice all of sudden became a little lower and louder. It was amazing. WHAT A GIFT! I never really understood what people with hearing aids go through until now. God is sure opening our eyes to many new doors and opening our hearts at the same time. And I must mention he looks adorable in them!
We also got results back and Wyatt tested positive for CMV. We are thankful it’s the better of the two and also thankful that the hearing loss is not genetic. We don’t want our little ones to have to worry about that when they get married and have kids one day. Thank you all for your prayers. However, Wyatt is not in the clear. The virus attacked him when I was pregnant. It’s extremely dangerous only during pregnancy and would appear as the common cold to anyone else. It is the cause of the hearing loss, enlarged spleen, etc. But there is also concern for his eyes/eyesight and brain function.
So where do we go from here? Wyatt will be getting an MRI of the brain on Monday. He will be going under anesthesia and as his momma this is a little scary but I know he will be in good hands at Children’s. He also needs to see an opthamologist to see if there has been any damage to his eyes. There is also a possibility that antiviral med’s via IV will help stop this virus from doing any more damage….i.e. his hearing loss could get worse than it already is. This is where we need lots of prayer and a miracle from God. He needs to get in to see an infectious disease doctor at Children’s TOMORROW. They only do this sort of thing on Friday’s so if they can’t squeeze him in tomorrow, we have to wait a whole week. And TIME IS OF THE ESSENCE right now that he gets on the med’s ASAP.
Psalm 34: 17-19
“When the righteous cry for help, the Lord hears
and delivers them out of all their troubles.
The Lord is near to the brokenhearted
and saves the crushed in spirit.
Many are the afflictions of the righteous,
but the Lord delivers him out of them all.”
1. Get in to see an infectious disease doctor TOMORROW
2. That God would cover Wyatt’s body and protect him from further damage of the virus….protect his eyes, his brain and his hearing loss from becoming worse.
3. That Brad and I would entrust Wyatt to God and fully lean on our Heavenly Father to take great care of Wyatt and protect his little body.
4. Prayer for HEALING!! We believe God can heal Wyatt in an instant! Please never forget to pray this too.